Dont be shy lets talk. Share our experiences

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Dont be shy lets talk. Share our experiences

Post by 742771 » Wed Jan 09, 2013 10:15 pm

There seems to be many of us out there watching, but not many of us are talking. Dont be shy, Dry Eyes are a painful condition, that we could have for a long time, and many of the treatments seem to be a bit hit and miss. Its hard for those who dont suffer from this condition to understand it, as quite often it doesnt show our eyes can look normal, but feel far from it. There are other forums where you can hear all about treatments in the USA, thats great, but here in the UK we need to share the same type of info.
Here's me.
I am 15months down the line after eye surgery ( using a laser) didnt have Dry Eyes before, but now have Dry Eyes, Blepharitis MGD ( both eyes) plus nerve damage one eye ( very painful).
It took several months for me to get referred to a hospital eye clinic where the consultant was Moorfields trained, it took a while longer for her to put together a diagnosis, including allergic to preservatives so limits products I can use, and my treatments have been evolving. No cure I'm afraid (yet.....I live in hope)
Here is where I am at - Tried Celluvisc, Optive, - now use Systane UD eye drops. Tried flax seed eye mask, now use Blephasteam Goggles ( great help) once a day, and warm cloth once a day. Tried Doxycycline for 2 months, now on Azyter eye drops ( second two week cycle - great help) in between had steroid drops. Take flaxseed oil 1000mg twice a day - seems to help . Havent tried punctual plugs yet - back to the hospital in 2 weeks.
From my experiences, Azyter combined with Systane has given me the best relief, but the pain persists. If there is something I can share, its dont give up, be persistant in asking to see a senior consultant at a hospital eye clinic ( Google them first, as some specialise in "front of eye" conditions, eg Dry Eye and Bleph) and ask for the latest treatments.
Good Luck, and please share your experiences, I am sure we can help each other.

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Joined: Thu Jan 24, 2013 5:30 pm

Re: Dont be shy lets talk. Share our experiences

Post by antikdragon » Thu Jan 24, 2013 5:37 pm

Glad to hear your experiences. I've had dry eye for some time, but worse after cataract surgery in both eyes. I'm looking for tips, like the goggles, that might help as doctors seem to know b*** all about the subject and just recommend OTC drops.

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Joined: Tue Nov 03, 2015 8:55 am

Re: Dont be shy lets talk. Share our experiences

Post by Gera66 » Tue Nov 03, 2015 12:10 pm

I am hardly producing any tears, have blepharitis and mgd. I have not been offered azyter but am going to ask for it. If prescribed, I notice that it's just a five day course of drops for eye infection and, looking online, the patient information leaflet does not tell you how to use it for mgd. When you read about its use in the USA for mgd they seem to use it for weeks and weeks. How do we use it here for mgd? Do we just rub it on the eyelid margins for five days or instill the drops as normal or both? This dry eye problem is horribly progressive - I used to get grittiness but now it's horrible sore stinging with strangely an equally sore stinging nose. Any advise is much appreciated.

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